Mom with ‘sleeping beauty syndrome’ takes days to wake up—she even slept through her labor

Imagine waking from a sleep only to discover you’ve slept for almost two weeks? That is what happened to this young mother from Birmingham.

When Jody Robson was 12 years old, she went to a friend’s sleepover. She felt tired and went to rest only to wake eight days later. That was her first sleep episode, with 50 more that followed over the course of 12 years. The duration of each sleep episode varies as well, some lasting two to three weeks.

In 2015, Jody, then 24, still did not know the cause of her sleep condition. She believes she has Kleine Levin syndrome (KLS), also known as Sleeping Beauty syndrome, which is a rare sleeping disorder. However, doctors have not officially diagnosed her with KLS yet.

For Jody, it is quite frustrating since her condition has caused her to miss important events in her life, including birthdays, Christmases, and the birth of her first son. Jody had an episode the day before going into labor, then woke two weeks later.

What scares Jody the most is not the sleep but the recovery, which can take days or sometimes weeks. There are occasions when she comes out of the stupor not remembering who she is.

On days when Jody is fully awake though, she appreciates all the moments she has even more.